Stories

• Living well with Lymphedema

  I love my Caregivers by Wanda

  I ignored my worsening arthritis and other signs of the aging process. Denial was successful until I developed an infection in my foot. At this point I had to admit that I could no longer reach my feet to not provide my foot care. Also, I had stopped wearing my compression stockings because I could not get them on or off without help.

  Get to Know the LRF by Ann

  In a recent telephone interview, Wendy Chaite, the founder of Lymphatic Research Foundation (LRF) shared her passion and experiences in actively working toward bringing about the research and other changes that are necessary to find preventive measures, more effective treatment, or a cure.

  A Caregiver Speaks Out by Partner

  A caregiver describes how lymphedema affects the lives of those who help others with lymphedema.

  A Leg Up on Lymphedema by Courtney Day

  It is our pleasure to introduce Courtney Day the youngest author to be featured on the Lymph Notes website. Courtney is a 14 year old young lady who has primary lymphedema. Instead of bemoaning her fate, Courtney, and her therapist Emily Smith PhD Vodder certified MLD/CDT, have created a helpful book titled “A Leg Up on Lymphedema.”

  Good News for North Carolina by Heather Ferguson

  A message from Heather Ferguson. I am grateful for this opportunity to share with you my story in obtaining mandated coverage for lymphedema diagnosis and treatment in the state of North Carolina. I hope this will encourage those of you in other states to pursue mandated coverage in your area after reading this.

  Improved Hospital Safety: The Story of G-Sleeve

  As a hospital patient do you worry that someone will ignore the precautions for your lymphedema at risk arm? A nurse, who shares these worries, has developed a safeguard to better protect these patients.

• Interviews

  I Will Survive by Ann

  My name is Tricia Junker and I am writing on behalf of my 8 month old niece, Jadyn Kietzer. The love story below is a testament for the song, “I Will Survive.”

  Lymphedema Resources, Inc. by Ann

  Claire Hauenstein shares the story of how "Lymphedema Resources, Inc." is able to help those with lymphedema through financial aid, a support group, and educational programs.

  NLN's Lymph Science Advocacy Program by Ann

  Bonnie Pike, the author of this story, and one of the founders of StepUp-SpeakOut, is fulfilling the promise of the LSAP program. If you have questions these programs you can contact Bonnie through the StepUp-SpeakOut website.

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