Stories

• Living well with Lymphedema

  Get to Know the LRF by Ann

  In a recent telephone interview, Wendy Chaite, the founder of Lymphatic Research Foundation (LRF) shared her passion and experiences in actively working toward bringing about the research and other changes that are necessary to find preventive measures, more effective treatment, or a cure.

  A Promise Kept by Ann

  In honor of the many generous contributors who helped to make the "Voices of Lymphedema" possible, a contribution has been made to the Lymphatic Research Foundation in their honor.

  At the Beach Again by Marguerite

  Cancer and lymphedema temporarily derailed my beach adventures; however, I'm back at the beach again!

  Backpacking and Lymphedema by TracyWVLN

  Living successfully with lymphedema is a balancing act between being active without overdoing and making the condition worse. The following are the steps I took that made it possible for me to successfully go back packing with the Boy Scouts!

  Improved Hospital Safety: The Story of G-Sleeve

  As a hospital patient do you worry that someone will ignore the precautions for your lymphedema at risk arm? A nurse, who shares these worries, has developed a safeguard to better protect these patients.

  Just Live With It! by Barbara Pilvin

  For four decades now, until I was diagnosed with primary (hereditary) lymphedema, the words "Just Live with it!" were all I was offered. Today, because of insurance limitations, I could easily die from this disease that is treatable and controllable.

  Living with Lymphedema and Noonans Syndrome by monkeygum

  I was born with Noonans Syndrome and at the age of 14 years old, I developed Lymphedema in both legs. Now at 17, I'm learning to live with it.

  River Rafting Fun by RaftingRita

  Lymphedema isn't about what you can't do. It is about figuring out to to manage to accomplish the things you want to do.

  Spirit Abreast: Dragon Boat Racing by Helena

  Dragon Boat Racing is colorful, hard-work, and a wonderful way to say, “Yes I can!” after breast cancer. All over the world women who are survivors in every sense of the word are demonstrating their “can do” attitude as they take part in Dragon Boat Racing.

  The Story of Lukas by Colleen

  In 1996, I had a son born with two normal legs, by Dec of the same year his leg began to swell. At the time we lived in a rural area of Upstate NY, and no one could tell us what was wrong with our son's leg. Many doctors later we found a wonderful woman in Syracuse NY who was able to do research and sent us to the Borris Lymphedema Therapy Clinic in Long Island NY for 5 weeks of treatment.

  What Happened to Your Legs? by Moonsoul

  I don’t really know how to start. Forever I have been talking to people who just give an odd look when I answer the question of, "Oh dear what did you do to your legs?" I was feeling pretty lost and discouraged, until I found this site. Reading the stories made me cry. Not because I was sad but because I was not alone.

To share your stories, please register and log in (enter username and password below), then go to My Stories.