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Welcome to your online information resource for those having, or at risk of developing lymphedema. This website is also for the family, friends, and therapists who care for these individuals.

ARE YOU NEW TO LYMPH NOTES?

  • Begin by reading the news on the home page.
  • Explore the many features available here.
  • There are over 50 informative articles posted on this site!
    To locate the articles of greatest interest to you, click on A Table of Contents. This will cause a list of the articles will appear.
    To read an article, just click on it's title.
  • To locate a specific forum topic, go to the orange bar near the top of the page and click on the heading "Lymph Notes Forums." This will take you to the forum page and you can search there.
  • To locate the definition of a medical term, go to the Lymphedema Glossary.
    This heading aids you in searching terms in alphabetical order.
  • The Rotator Picture in the upper right corner of the home page leads you to an interesting patient story. To read a story, just click a rotator picture title.
    To enjoy the next story, click on the next photo link and that story will appear.

 

HELPFUL BOOKS FROM LYMPH NOTES

[ Lymphedema and Lipedema Nutrition Guide ]

Available now Lymphedema and Lipedema Nutrition Guide!

Order a paper copy now from Amazon.com or ask your favorite bookstore for ISBN 978-0976480686. E-books are available for Amazon Kindle, Apple iBooks, and other e-book readers (ISBN 978-0976480693).

 

 

[ Living Well with Lymphedema (front cover) ]

Living Well with Lymphedema by A. Ehrlich, MA, A. Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. It is wonderful for patients and for those at risk. So many sources tell lymphedema patients what they can not do. This book encourages us in what we can do!" For ordering information click here or buy now from Amazon.com.
 

 

[ Lymphedema Caregiver's Guide cover ]

Lymphedema Caregiverís Guide is the first book specifically for family, friends, and professionals who provide, or arrange for, lymphedema home care. Written by Mary Kathleen Kearse, PT, CLT-LANA (an experienced and highly qualified lymphedema therapist), Elizabeth McMahon, PhD (a clinical psychologist), and Ann Ehrlich, (a professional medical writer). "This book covers all aspects of lymphedema home care including emotional support." For more information, click on Lymphedema Caregiverís Guide. For ordering information click here or buy now from Amazon.com.

 

[ Voices of Lymphedema (front cover) ]

Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema first hand. As described by one of the many enthusiastic reviewers, "This is a must read book!" For more information and reviews (including those from the National Lymphedema Network (NLN) click here. Buy now from Amazon.com in paperback or Kindle e-book format. Voices is also available in other e-book formats including B&N Nook and Apple iBooks.
 

 

 

[ Overcoming the Emotional Challenges of Lymphedema--front cover ]

Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD is an "Empowering and practical book, with exercises that the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." For ordering information click here or buy now from Amazon.com.

 

 

2016 NLN International Conference in Dallas 

We look forward to seeing you at the NLN meeting in Dallas August 31 – September 4, 2016. The conference will include sessions for patients and professionals; see the conference website for details.

Look for us at:

  • [H12]  COMPREHENSIVE LE MEASUREMENT AND TOOLS with Emily Iker, MD

  • [H13] The Psychosocial Impact of Lymphedema and Implications for Self-Care with Elizabeth McMahon, PhD.

  • [H14] Food for Thought: Nutritional Considerations for Lymphedema with Chuck Ehrlich and Emily Iker, MD.

  • Poster: EATING TO STARVE LYMPHEDEMA AND LIPEDEMA
    Authors: Chuck Ehrlich, Emily Iker, MD, Karen Herbst, PhD, MD, Linda-Anne Kahn, CMT, CLT-LANA

  • Poster: VITAMINS, MINERALS, AND SUPPLEMENTS FOR LYMPHEDEMA AND LIPEDEMA
    Authors: Chuck Ehrlich, Emily Iker, MD, Karen Herbst, PhD, MD, Linda-Anne Kahn, CMT, CLT-LANA

  • Oral Presentation: LYMPHEDEMA FOLLOWING PELVIC LYMPHADENECTOMY, Emily Iker, MD

  • Poster: STEPS TO PROPER DIAGNOSIS AND SUCCESSFUL MANAGEMENT OF LYMPHEDEMA AND LIPEDEMA, Emily Iker, MD

  • Poster: DIAGNOSIS AND MANAGEMENT OF COMPLICATED LYMPHEDEMA PATIENTS, Emily Iker, MD

  • Roundtable Sessions on nutrition in the mornings with the authors of Lymphedema and Lipedema Nutrition Guide

  • Book signings at the NLN Store in the exhibit area.

 

SPECIAL RESOURCES

  • To access the information needed to protect yourself from the hazards of developing lymphedema, consult this article A Table of Contents. It lists the more than 50 articles that are available on this website.
    These articles provide information about lymphedema, the dangers associated with it, and solutions that an help you.
  • Our article Vascularized Lymph Node Transfer (VLNTx) describes the surgical technique of transplanting lymph nodes from one place to another to improve the flow of lymph. On these forums, Lymph Notes members have shared their experiences and concerns about this new surgical technique.
  • To locate lymphedema treatment resources go to http://www.alfp.org and download the American Lymphedema Framework Project app for your phone.
  • To discover the new NLN program, "Stomp Out Lymphedema," visit this website
    www.lymphnet.org/events/stomp-out-lymphedema
  • The winners of the nine "Lymph Notes scholarships," which are being awarded to help ease the lymphedema therapist shortage, are announced on the www.lymphaticnetwork.org website.

 

© 2016 by Lymph Notes, all rights reserved.  This information does not replace the advice of a physician.

Updated: 2016-06-22


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