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Old Sep 20, 2004, 11:13 PM
marlene L marlene L is offline
Junior Member
Join Date: Sep 2004
Location: Orient,Iowa
Posts: 4
Making New Friends with Lymphedema

I feel that there are many new friends out here I haven't met yet. I thought I was alone with this. I's nice to know I am not alone.

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Old Jun 30, 2005, 02:53 AM
bigleg bigleg is offline
Junior Member
Join Date: Jun 2005
Location: Bemidji, MN
Posts: 15
I agree

I agree with you. I do know one person in my town who has this. We're going to try to get a support group started. I like this site even better, though, because most of the women who have lymphedema in my town go to the same therapist, who has just one way of dealing with this malady. It's nice to read about other options/things to try.

I'd never heard of this condition before my leg swelled up. You'd think with all of the people in the world who get cancer and then get this, we'd have heard about it before we got it.

Take care! Pat
1B cervical cancer; hysterectomy, 33 lymph nodes removed, 28 radiation treatments, lymphedema followed after six months.
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Old Aug 14, 2007, 08:56 AM
dray138 dray138 is offline
Junior Member
Join Date: Jul 2007
Location: N.E Pennsylvania, Poccono mountain region in the country
Posts: 19
Learning w/ kindness

Im' glad to have people to talk to about this disease. There is no-one in my town and most people think you are nuts when you tell them that you have Lymphedema. Ive' been learning so much about my condition or situation that I have. Ann has been really helpful to me.

Have a blessed day,
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Old Aug 14, 2007, 09:08 AM
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Ann Ann is offline
Lymph Notes Team
Join Date: May 2003
Location: The South
Posts: 231
Hi Dray,

I'm glad I've been able to help you. Meeting people on these forums is a source of great joy for me.

We, the Lymph Notes Team, are working on a new project to help in another way. We are working on a book titled "Voice of Lymphedema." It contains stories contributed by more than 75 individuals (some patients, some professionals). We found these stories to be inspiring and very interesting. I think others will also like them.

Watch the home page for information when the book publishes. We are hoping that will be in early October.

Best wishes,

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