it is what it is

[Dhippy65]

hello i am surviving from breast cancer after 10 surgeries chemo radiation you think the worse is over but no doctors dont tell you the whole truth i have acute lymphadima in my right side do to the way i scar i have it bad. worse of all i have it in my head my neck my ears i cant ware compresson sleeve because it makes it pool in my neck i have had an earache for months lost my job i was a warehouse manager for 18 years i am scared sometimes i cant even take a gallon of milk from fridge or open a bottle of water. all i know is i hurt all the time they say if its not better in a year then it wont be. its been a year and its just getting worse. my armpit is numb i have nightmares i am going to cut my self shaving and wont feel it and get infection.i really dont know how to go on like this. due to cancer i have lost everything my house my car my kids moved away or homeless i have a storage unit. now i am losing my arm and my mind from the constant earaches it is what it is

[LymphedemaGirl]

Hi Dhippy65,
I am so sorry to hear about your desperate situation. Do you recieve treatment with a proper lymphedemaspecialist? I am not a doctor or anything but I know there is a lot that can be done, also with compression garments for day- or nightuse. You may have to shop around with clinics and fitters before you find a good one. I've got a really good fitter, he says there are many possibilities with compression garments. Where are you - UK, US or somewhere else?
Have hope! I feel certain than things can change even after a year. You need to find the right treatment and garments for you.

PS: I use a Intuition shaver when shaving my lymphedemaleg, it is really good and gentle.

[Helena]

Originally Posted by Dhippy65

hello i am surviving from breast cancer after 10 surgeries chemo radiation you think the worse is over but no doctors dont tell you the whole truth i have acute lymphadima in my right side do to the way i scar i have it bad. worse of all i have it in my head my neck my ears i cant ware compresson sleeve because it makes it pool in my neck i have had an earache for months lost my job i was a warehouse manager for 18 years i am scared sometimes i cant even take a gallon of milk from fridge or open a bottle of water. all i know is i hurt all the time they say if its not better in a year then it wont be. its been a year and its just getting worse. my armpit is numb i have nightmares i am going to cut my self shaving and wont feel it and get infection.i really dont know how to go on like this. due to cancer i have lost everything my house my car my kids moved away or homeless i have a storage unit. now i am losing my arm and my mind from the constant earaches it is what it is

When I read your posting I remembered visiting the JoVi website and it has head & neck compression garments. There is a video and I hope will help. Helena