Anyone have head and neck lymph edema

[cinderella58]

Hello all may I ask does any one esle suffer from this is the face neck gums and lips I have had a rare thyroid cancer and had neck dissections and as times goes on the swelling has become worse and worse would love to hear if anyone has had the same problems I am searching still for help with getting help for the many that have had head and nekc sugeries and suffer from this looking forward to hearing from other after reading so many other stories on here yet it is the most unrecongnized and misunderstood conditions lymph edema effects so many we need to get itin the fore front as many more will get it everyday until we get help I am sadden to see how many are sad and lost as I am and how long this has been going on thank you for this site !!!!!If anyone has had head and neck syptoms please write and share take care all God Bless this is a painful condition for so many

[Ann]

I found a website that I hope will be of help to you. It is
http://www.cancer.net/patient/All+Ab...ncer+Treatment If this link does not work (it is sooo long) try searching under "American society of Clinical Society." I found a lot of information here.

What I didn't find was dental care if you have radiation of your teeth. Dental enamel is the hardest tissue in the body, but it needs help after radiation. You would be looking for something to help with dry mouth and often dentists give out samples of this (Biotine). You also need fluoride to help keep that enamel strong.

Best wishes in finding the information (and support) that you need.

Ann, from Lymph Notes

[Dhippy65]

i to have lymph edema in my head and neck. its very frustrating constant earache
i wish the best for you. i understand.
dj

[Linda]

I has having trouble with lymphedema affecting my ear and it hurt! I told my therapist about it and she suggested doing a massage known as a water wheel. Ask your therapist -- so you are certain to get it right. A short version is that this is a circular massage motion with the fingers on either side of the ear and moving the fingers in a circular motion. Of course you do the motion at the base of the neck first -- but then that always comes first to open the drainage.

PLEASE ASK YOUR THERAPIST -- I dould not want you to follow suggestions that might not be accurate.

LOL