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Insurance, Medicare Insurance coverage for lympedema, reiumbursement, and letters of appeals. Medicare regulations and legislation. (See Lymphedema News for research, studies, and clinical trials.)

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Old Mar 13, 2006, 12:39 PM
Terrilyne Terrilyne is offline
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Join Date: Mar 2006
Location: Georgia
Posts: 2
Angry Sometimes I just want to say,"Why me"?

Well, I am new to this web site and I think it is great that I found something that I can talk to other with LE. I am soon to be 30 and started to see symptons of LE when I was 12. Gosh, that seems like was a different time ago. I was able to wear shorts and skirts with no problem. But now it sure is different. I guess I could wear them, but then I would get the stares from everyone else and have them think I was some type of freak or something. So I don't wear shorts or anything else that exposes my legs. It is hard for me to buy the compression hose and I don't have the money for the therapy. Although I do wear the hose that aren't covered by insurance. So they usually last me about 2 months but then I wear them for about 6 months. So, sometimes I wonder how come I can't be "normal" and just wear a cute skirt or capris for one day and actually not have people look at me and wonder what is wrong with me. At times I wonder will I stay at home and be on disability. I have a 5 year old and sometimes I can't do the things she wants me to do because I am just physically unable to.
Anyway, Thanks for letting me vent for just a moment. I am sure that all of you understand how I feel.
Terrilyne
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Old Apr 2, 2006, 08:26 AM
outofcontrol outofcontrol is offline
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Join Date: Jan 2006
Posts: 31
Hi there

Just want you to know that you are not alone. There are times when I am feeling so sorry for myself that I tell my boyfriend..."I am having a feel sorry for me moment. Just let me have it." He just goes on doing what he needs to an pretty soon I am "okay" again. There are a lot of emotions that seem to go with this problem as I have learned. But, we will be alright. Just keep positive and look on the brighter side of life. We do what we have to do to go on day to day. I am no means a expert on Lymphedema as I still have not solved the problem of keeping my wraps up on my thighs and other issues I am having ...so, remember we are here to support you.
Keep your chin up
Anna
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  #3  
Old Apr 17, 2006, 05:28 PM
Nutsynatt Nutsynatt is offline
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Join Date: Apr 2006
Posts: 10
Why Me?

I completely understand about the stockings and people looking at you funny! I live in a place that heats up in the summer so I have to wear my thigh high stockings and shorts. I try to ignore it and my kids make a little joke about it because one leg is so tan and one is so white.

I too have kids and I understand the limits lymphedema puts on you.

I am glad I found a place with information from people with Lymphedema. So that we can talk and state our frustrations with this. I know no one my one age that has this and it can be very frustrating and overwheling at times. But life is strange and just take it day by day. Natalie
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